You Are Not Alone!

If you have been living with Multiple Myeloma; whether you are newly diagnosed or a long-time survivor, asymptomatic or with bone damage, sufferer or caregiver, you are not alone.  The Myeloma community is strong, informed, and involved.  Even the most experienced veteran can find battling Myeloma daunting but why fight that battle alone?  Come to a support group meeting and you will find that there are people who have already lived through whatever you’re enduring now.  Take advantage of their experience and share what you’ve learned with others.  Most of all don’t be afraid to ask questions… that’s how we all grow stronger.

 

  • NOTICE – SPECIAL MEETING – JUNE 14-  The International Myeloma Foundation is holding its Annual Minnesota Workshop at The Westin, Edina Galleria, 3201 Galleria (York Ave. S, between W 69th & W 70th St.) in Edina on June 14.  If you’ve never attended a workshop you don’t know what you’ve missed.  A wealth of information is presented in plain English, so be prepared to take notes.  The speakers are:  Craig Emmitt Cole, M.D. Division of Hematology/Oncology University of Michigan;  Shaji Kumar, MD Hematology Mayo Clinic, Rochester, MN;  Teresa Micelli, RN, BSN, OCN Mayo Clinic, Rochester, MN.   Refreshments and lunch will be provided. Registration: 9:00 – 10:00 AM Meeting: 10:00 AM – 3:00 PM.   You can check out the International Myeloma Foundation’s website posting at: http://myeloma.org/EventPage.action?tabId=7&queryPageId=4&eventCategoryId=182&eventId=688.

NOTICE – SAD NEWS: On Thursday, April 17th The Stillwater Support Group lost it’s co-founder and leader Karl Vollstedt.  Business KarlLinks to Karl’s International Myeloma Foundation (IMF) and Pioneer-Press/TwinCities.com Remembrance and Obituary can be found on the Stillwater Support Group page.

There is a short tribute to Karl on the Blog Page. Please feel free to leave a comment.

UPDATE – The Federal Parity Bill Needs your Voice!  Email your congressional representative today:  With your help last year the International Myeloma Foundation secured 53 co-sponsors for the Cancer Drug Coverage Parity Act of 2011 authored by Rep. Brian Higgins. A new congressional session starts every two years, which means we must ask those representatives who sponsored last year to recommit to standing up for myeloma patients.  Follow this link for instructions on how you can help take action now:  http://www.capwiz.com/myeloma/issues/alert/?alertid=62511456

UPDATE – Pain Free Donations:  What can be better than making a donation which doesn’t cost you a thing?  The next time you shop at Amazon.com you can do just that.  Navigate to Amazon by using the address:  amazon.myeloma.org, and a percentage of what you spend will be donated to the IMF.  That’s what we call a smart buy!

Minnesota’s Support Community 

Minnesota is the home of two internationally recognized leaders in Myeloma research: The Mayo Clinic and the University of Minnesota, along with many other hospitals, clinics, and cancer centers which, not only treat Myeloma, but also take part in trials.  Along with these institutions we also have very active support groups.  Their locations are:

Twin Cities (St. Louis Park)

Stillwater

Rochester

Fairmont Area

All of the group’s meet once a month on different dates except the Fairmont Area support group which meets every other month.  Please visit each group’s web page to see what they’re up to this month.