You Are Not Alone!

If you have been living with Multiple Myeloma; whether you are newly diagnosed or a long-time survivor, asymptomatic or with bone damage, sufferer or caregiver, you are not alone.  The Myeloma community is strong, informed, and involved.  Even the most experienced veteran can find battling Myeloma daunting but why fight that battle alone?  Come to a support group meeting and you will find that there are people who have already lived through whatever you’re enduring now.  Take advantage of their experience and share what you’ve learned with others.  Most of all don’t be afraid to ask questions… that’s how we all grow stronger.

UPDATE – The Calendar Is Up!  Look at this page’s drop-down menus and you’ll see the addition of “Calendar”. It is a link to Myeloma Support Minnesota’s full-page Google calendar which includes Group Meetings, local live events, and On-line events, webinars and teleconferences.

UPDATE – Welcome Fairmont!  On April 2013 the newest Myeloma support group was started by Myeloma survivor Joyce Schultz. The Fairmont, MN Area Multiple Myeloma Support Group meets at 10:00 AM on the fourth Saturday of alternate months. Visit their support group page for more information about this important addition to Minnesota’s Myeloma community.

UPDATE – The Federal Parity Bill Needs your Voice!  Email your congressional representative today:  With your help last year the International Myeloma Foundation secured 53 co-sponsors for the Cancer Drug Coverage Parity Act of 2011 authored by Rep. Brian Higgins. A new congressional session starts every two years, which means we must ask those representatives who sponsored last year to recommit to standing up for myeloma patients.  Follow this link for instructions on how you can help take action now:  http://www.capwiz.com/myeloma/issues/alert/?alertid=62511456

UPDATE – Pain Free Donations:  What can be better than making a donation which doesn’t cost you a thing?  The next time you shop at Amazon.com you can do just that.  Navigate to Amazon by using the address:  amazon.myeloma.org, and a percentage of what you spend will be donated to the IMF.  That’s what we call a smart buy!

UPDATE – Newspaper story still available online:  Rubin Rosario, a reporter for the Saint Paul Pioneer Press and a Multiple Myeloma survivor,  joined the Stillwater Support Group for its December meeting – the Christmas potluck buffet.  His article about his visit appeared in the Sunday, December 16 paper and is available online at the Twincities.com website.  Here is a link to the article, Ruben Rosario: Battling cancer, but not alone, at Stillwater support group, or you can use the web address : http://www.twincities.com/localnews/ci_22194775/ruben-rosario-battling-cancer-but-not-alone-at.

Minnesota’s Support Community 

Minnesota is the home of two internationally recognized leaders in Myeloma research: The Mayo Clinic and the University of Minnesota, along with many other hospitals, clinics, and cancer centers which, not only treat Myeloma, but also take part in trials.  Along with these institutions we also have very active support groups.  Their locations are:

Twin Cities (St. Louis Park)

Stillwater

Rochester

Fairmont Area

All of the group’s meet once a month on different dates except the Fairmont Area support group which meets every other month.  Please visit each group’s web page to see what they’re up to this month.