TwinCities – January 2017: Neuropathy

What a great way to start 2017!

We had over 40 attendees turn out in the cold for the meeting. The topic of discussion was Neuropathy as we were joined by Michael Boland of the Minnesota Neuropathy Association. Mr. Boland, who has lived with debilitating neuropathy since being poisoned with malathion in an industrial accident, discussed what the members of his association have learned about dealing with what is often the bane of our existence and the cost of our therapies. Among points of interest were:
• “Chemotherapy related” is the fastest growing segment of newly diagnosed neuropathy.
• Vitamin-B deficiency can lead to neuropathy. Have your doctors check for it.
• There is no ‘silver bullet’. What works for someone may not work for someone else.
• Try to limit your intake of refined sugar and simple carbohydrates.
For more go the the Minnesota Neuropathy Association website:
http://www.neuropathy-mn.org

Jan Anderson recommended a website Patients Like Me. It appears to be similar to the IMF supported SmartPatients … a place which acts as a worldwide support group community where people exchange their thoughts, concerns, problems and solutions (good, bad and otherwise).

Links:
Minnesota Neuropathy Association: http://www.neuropathy-mn.org
Patients Like Me: https://www.patientslikeme.com
SmartPatients: https://www.smartpatients.com

– Gerry Landy

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