For our February 17 meeting, we had open discussion. Attendees were many of our local regulars and the conversation was very good. A lot of sharing of experiences and discussion about how to move forward with treatment. People also provided feedback on topics of interest for future meetings. I will be working on covering those topics either in web links (like below) or through guess speakers (i.e; November).
LLS Program Links:
The Leukemia & Lymphoma Society- Minnesota Chapter (also serving North Dakota & South Dakota) has reopened the Local Travel Assistance Funding for blood cancer patients! Eligible patients can receive $500 in assistance thanks to a generous gift by the Earl D. and Marian N. Olson Fund in memory of Douglas J. Olson.
Patient eligibility criteria for travel assistance remains unchanged:
· Applicants (patients) must be US citizens or permanent residents which is verified by applicant’s physical address
· Applicants must have a confirmed diagnosis of blood cancer
· Applicants may be insured or uninsured
· Applicants must meet financial eligibility criteria defined as an annual income at or below 500% of the Federal Poverty Level (FPL)
A one-time grant of $500 is available for qualified patients per year:
· Awards are limited to one per patient, per year
· Awards are based upon a first-come first-serve basis
· The program will be offered for as long as funding is available
How to Apply
· Patients can apply via the attached application, which should either be emailed to LLS.MNG@lls.org, faxed, ormailed back to The Leukemia & Lymphoma Society Minnesota Chapter (instructions at bottom of attached application)
· Patients can only receive travel assistance once per 12 months. If a patient received assistance more recently than March 6, 2017, they will need to wait to apply until 12 months has passed from their last grant.
We have a new Clinical Trials Support Center where patients and families can work one-on-one with an LLS Clinical Trial Specialist who will personally assist throughout the entire clinical-trial process. Clinical Trial Specialists are registered nurses with expertise in blood cancers.
Additionally, if any of your blood cancer patients or caregivers would like to connected with a trained volunteer who is also blood cancer patient/survivor, we would be happy to connect them via our First Connection Program. First Connection is a peer-to-peer connection program that offer patients and caregivers and opportunity to speak to someone who has truly been through it.
If your patients are caregivers have any other needs regarding blood cancer education, treatment information, psychosocial support, CoPay Assistance eligibility, or peer support, please refer them to one of our Information Specialists at 800-955-4572 or through our Online Referral Form! Our 12 Information Specialist are all master level RN’s and oncology clinical social workers ready to assist patients and families through their blood cancer diagnosis.
From the International Myeloma Foundation – What Myeloma Patients Should Put in Their Grocery Baskets in 2018: