Category Archives: Myeloma

Myeloma

TwinCities – April 2017: Empliciti

We had yet another big turnout for the April 8 meeting where we were joined by Ima Garcia, of Bristol-Myers Squibb Pharmaceuticals, who gave a presentation on their monoclonal antibody,  Empliciti (elotuzumab).  The presentation and following Q&A covered issues including  … Continue reading

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TwinCities – March 2017: Talking About Us

The March meeting was a sharing session.  Our 24 attendees represented a cross-section of the Myeloma community as a whole.  We had nearly an equal spread of people 10 years and over, 5-10 years, 2-5 years and newly diagnosed.  We … Continue reading

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Stillwater – March 2017: Understanding Lab Tests

The Stillwater, Minnesota Multiple Myeloma Support Group held their monthly meeting at the Family Means Center on March 8, 2017. Much of the discussion during the patient sharing time centered on peripheral neuropathy and the continuing search for an effective … Continue reading

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Stillwater – February 2017: Lunch with Friends

On February 8th, 2017, the Stillwater Minnesota Multiple Myeloma Support Group met at Gulden’s restaurant in Maplewood for a delicious lunch and patient sharing time. The group was very happy to welcome back members of the group who were recovering … Continue reading

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TwinCities – February 2017: Paying for Myeloma

February 11th:  It was a good turnout with quite a few new or returning members to the group.  Welcome!   We hope you liked what heard and the support you felt in the group and look forward to seeing you … Continue reading

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Rochester – January & February 2017

February 18th, 2017 Our guest was Ima Garcia from Bristol-Myers Squibb (BMS) who shared with us information regarding EMPLICITI™ (elotuzumab), an immune therapy used in combination with lenalidomide and dexamethasone for previously treated patients with myeloma. • January 17th, 2017 Dr. … Continue reading

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TwinCities – January 2017: Neuropathy

What a great way to start 2017! We had over 40 attendees turn out in the cold for the meeting. The topic of discussion was Neuropathy as we were joined by Michael Boland of the Minnesota Neuropathy Association. Mr. Boland, … Continue reading

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Stillwater – January 2017: ASH Highlights

American Society of Hematology (ASH) 2016: Bev Culy and Barb Davis’s Notes • Smoldering myeloma treatment is still a bit of a mystery as experts don’t want to “overtreat” if the disease is not progressing nor do they want to … Continue reading

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TwinCities – December 2016: “Alumni” Meeting

December 2016 Our Annual Alumni Reunion Meeting This years version was a “doozy” as we double dipped on Pat’s 20 years of survivorship AND her retirement from active leadership of the support group that she and Helen Burg started 20 … Continue reading

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Goodbye Karl

What do you say when your leader is gone? Karl Vollstedt was a friend, a counselor, a cheerleader, a confessor, a mentor and a father figure to a group of world-wise adults: in short, he was our leader. I was … Continue reading

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