Tag Archives: Multiple Myeloma

TwinCities – March 2018: Understanding Your Lab Tests

On March 10 a large and lively group convened in the Park Nicollet Methodist Hospital Heart & Vascular Center’s Auditorium to see the presentation “Understanding Your Myeloma Lab Tests” given by Melanie Smerillo; MSN, RN, PHN Clinical Nurse Educator with Takeda … Continue reading

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Rochester – February 2018: A Day to Ourselves

For our February 17 meeting, we had open discussion.  Attendees were many of our local regulars and the conversation was very good.  A lot of sharing of experiences and discussion about how to move forward with treatment. People also provided … Continue reading

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TwinCities – February 2018: CAR-T Cell Therapy

February 10, Twin Cities Support Group: CAR-T Cell Therapy Another cold Saturday on the Twin Cities and another well attended meeting.  After projector problems forced us to change conference rooms we finally got our meeting rolling nearly on time with … Continue reading

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Rochester – January 2018: ASH Conference Review

For those who were able to attend, you know this was an important meeting. Dr. Francis Buadi, M.D., Myeloma specialist from Mayo Clinic Bone Marrow Transplant Program provided updates from the 2017 ASH meeting and general Q&A.  The meeting was … Continue reading

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TwinCities – January 2018: Darzalex (Daratumumab)

January 13, 2018 – Twin Cities: Darzalex (Daratumumab) It a was cold… -9° cold morning in St. Louis Park but 37 intrepid souls turned up for the first support group meeting of the new year.  Our topic of discussion was … Continue reading

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Stillwater – January 2018: Empliciti (Elotuzumab)

Stillwater – January 10, 2018: Empliciti (Elotuzumab) A frigid January 10 brought a full house for our first meeting of 2018. We were joined by Ima Garcia, of Bristol-Myers Squibb Pharmaceuticals, who gave a presentation on their monoclonal antibody, Empliciti (elotuzumab). … Continue reading

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Rochester – December 2017: Relaxed and Relaxing Meeting

Rochester – December 16, 2017 Although we did not have an “official” meeting, there were about 5 of us who came for a donut and stayed for casual discussion. A few people drifted in and out to socialize. December may … Continue reading

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2017 IMF Support Group Leaders Summit

From July 20th through the 23rd seventy support group leaders from nearly sixty support groups met at the Four Seasons Dallas at Las Colinas for the International Myeloma Foundation’s 18th annual Support Group Leaders Summit.  The stated goal of the … Continue reading

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TwinCities – May 2017: Binding Site & Blood Tests

Another great turnout for the May 13 meeting which featured a presentation by Naveen Bangia, PhD;  Director, Scientific Affairs for the The Binding Site Inc. He discussed Lab Values and how Binding Site tests, Freelite and Heavylite, help doctors and … Continue reading

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Stillwater – May 2017: Transplants & Social Work

On May 10 we were joined by Brady Voigt, LICSW, MSW; Transplant Social Worker at the Mayo Clinic, Rochester.  Topics covered by Brady were: 1) Long-term financial impact of multiple myeloma — available resources • Short & Long term disability. • … Continue reading

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