You Are Not Alone!

If you have been living with Multiple Myeloma; whether you are newly diagnosed or a long-time survivor, asymptomatic or with bone damage, sufferer or caregiver, you are not alone.  The Myeloma community is strong, informed, and involved.  Even the most experienced veteran can find battling Myeloma daunting but why fight that battle alone?  Come to a support group meeting and you will find that there are people who have already lived through whatever you’re enduring now.  Take advantage of their experience and share what you’ve learned with others.  Most of all don’t be afraid to ask questions… that’s how we all grow stronger.

Please contact us if you are interested in starting a support group in your area.

The Leukemia & Lymphoma Society (LLS) “Light the Night”

The Leukemia & Lymphoma Society’s Light The Night event is this Sunday, Oct. 14 at Target Field.  As was the case last year, members of the TwinCities support group will be joining Jenny Feinberg and the Celgene team.  
The official schedule:

5:00 p.m. Festivities begin
6:20 p.m. Survivor photo
6:40 p.m. Ceremony
7:00 p.m. Walk starts

We may actually assemble closer to 5:30 – 5:45 p.m. as most of us will be skipping the registration process.

Twin Cities MM Support Group Special Notice: Take Our Survey
We’re already planning our topics and speakers for 2019 and we want to know what you think about how the Twin Cities MM support group is doing and where it’s heading.

• Are we meeting the needs of our members and living up to our mission to inform, inspire, and support our community?
• What are we doing right?
• What are we doing wrong?
• And how can we improve?

To help us sort things out we have created a Google survey to get a better image of who our members are and what is important to them. Please look it over and fill out what you are comfortable answering. This information will not be shared with anyone outside of our group and your answers arrive to us anonymously.

To go to the survay. Click HERE.

Leukemia & Lymphoma Society’s FY-2019 Travel Assistance Program
The Minnesota chapter of the Leukemia & Lymphoma Society is offering an annual grant of $500 for patient travel expenses.  Click HERE for the program’s details and to download an application.

UPDATE: Financial Aid – Updated October 8, 2018
Three co-pay assistance programs continue to accept new Myeloma patients.  They are:

• The HealthWell Foundation Multiple Myeloma Medicare Access Program is OPEN for Myeloma.  The program’s maximum award level is $10,000 annually for insurance premiums, co-pay, co-insurance, and medical & prescription deductibles. The HealthWell Foundation Myeloma page can be found HERE.

• The Patient Advocate Foundation’s Co-pay Relief Fund is OPEN to Myeloma patients who earned under 400% of the 2017 Federal Poverty Level and have Medicare, Medicaid, or Military Benefits.  Maximum award level is $10,000 annually for patients on a Medicare including Supplemental and Advantage plans. The PAF Co-pay Relief Fund can be found HERE.

The Leukemia & Lymphoma Society (LLS) Co-Pay Assistance Program is OPEN for new applicants. Maximum award level is $7,500 annually to be used for Blood cancer treatment-related co-payments, Private health insurance premiums, and Medicare Part B, Medicare Plan D, Medicare Supplementary Health Insurance, Medicare Advantage premium, Medicaid Spend-down or co-pay obligations.  The LLS Co-pay Relief Fund can be found HERE.

The Assistance Fund, CancerCare, Good Days/Chronic Disease Fund, and Patient Access Network Foundation (PAN) remain closed to Myeloma patients.

Please contact us if you become aware of any new programs or of any existing program re-opening.  At times like this we truly need to live up to our “Support” group mission.

Read our Blog!
Since 2017 we are using our Blog section to summarize our most recent meetings and provide links to issues, resources and websites which members reference or request.  Please feel free to leave a comment.   Because we are using the free version of WordPress you may see an ad in the Blog section.  We receive no money and have no relationship with any advertiser.

Minnesota’s Support Community 
Minnesota is the home of two internationally Minnesota Seal on Silhouette Skewrecognized leaders in Myeloma research; The Mayo Clinic and the University of Minnesota.  In addition to these two institutions there are many other hospitals, clinics, and cancer centers which, not only treat Myeloma, but also take part in latest drug trials and treatment studies.

We also have very active support groups.  Their locations are:

Twin Cities (St. Louis Park)



Fairmont Area

Central Minnesota

All of the group’s meet once a month on different days except the Fairmont Area support group which meets every other month.  Please visit each group’s web page to see what they’re up to this month.

NOTICE: Advertisements
This website is hosted on the free version of WordPress.  WordPress offers excellent creation, maintenance, and statistical tools.  They also save us the cost of renting server space.  The price is that they reserve the right to post advertisements at the bottom of our webpages.  Myeloma Support Minnesota in no way recommends, supports, or endorses any of the advertised companies.  In fact, we have no idea who, or what, is seen by our viewers (and some seem a bit shady).