You Are Not Alone!

If you have been living with Multiple Myeloma; whether you are newly diagnosed or a long-time survivor, asymptomatic or with bone damage, sufferer or caregiver, you are not alone.  The Myeloma community is strong, informed, and involved.  Even the most experienced veteran can find battling Myeloma daunting but why fight that battle alone?  Come to a support group meeting and you will find that there are people who have already lived through whatever you’re enduring now.  Take advantage of their experience and share what you’ve learned with others.  Most of all don’t be afraid to ask questions… that’s how we all grow stronger.

UPDATE: Financial Aid 
As of April 12 three copay assistance plans are open for new Myeloma applicants. They are the Leukemia & Lymphoma Society, the HealthWell Foundation and the Patient Advocate Foundation.  For rules and contact information visit the Financial Aid page on this website.

IMF Statement on Proposed Senate Health Bill:
Now that Congress has returned from its 4th of July recess Myeloma patients must continue to do what we can to make certain that Senators keep us in mind.

On June 27 the IMF responded to the Senate’s draft of healthcare reform legislation. The IMF determined that the draft bill, known as the Better Care Reconciliation Act had the potential to negatively affect Myeloma patients and that there are particular concerns about how the bill will affect people with preexisting conditions and those on Medicaid.

The bill proposed changes allowing states to opt out or modify what qualifies as an essential health benefit (EHB). EHBs are important to cancer patients because they ensure health plans include the coverage patients need. Without them, healthcare plans that include the coverage patients need could become too expensive for them to afford.

Additionally, the bill modifies the age band rating to a 5:1 ration, meaning older people could be charged five times more than a younger person for the same coverage. This change would be problematic for the many cancer patients already struggling to afford their coverage.

While the IMF recognized the current Affordable Care Act has many problems that need to be fixed, it believes the Senate’s Better Care Reconciliation Act is a step in the wrong direction when it comes to protecting myeloma patients and their families.

To contact your legislator with your thoughts about the bill, please CLICK HERE.

Read Our Blog !
New for 2017 we are now using our Blog section to summarize our most recent meetings and provide links to issues, resources and websites which members reference or request.  Please feel free to leave a comment.   Because we are using the free version of WordPress you may see an ad in the Blog section.  We receive no money and have no relationship with any advertiser.

LLS Travel Assistance Program (Minnesota & Dakotas)
For 2017 the Minnesota Chapter (including the Dakotas) of the Leukemia & Lymphoma Society (LLS) is offering a one-time annual grant of $500 per patient as part of its Travel Assistance Program.  The grant is available for qualified blood cancer patients with financial need  between July 1, 2016 and June 30, 2017. Click HERE for more information and a link to the application.

Minnesota’s Support Community 
Minnesota is the home of two internationally Minnesota Seal on Silhouette Skewrecognized leaders in Myeloma research; The Mayo Clinic and the University of Minnesota.  In addition to these two institutions there are many other hospitals, clinics, and cancer centers which, not only treat Myeloma, but also take part in latest drug trials and treatment studies.

We also have very active support groups.  Their locations are:

Twin Cities (St. Louis Park)



Fairmont Area

All of the group’s meet once a month on different days except the Fairmont Area support group which meets every other month.  Please visit each group’s web page to see what they’re up to this month.