If you have been living with Multiple Myeloma; whether you are newly diagnosed or a long-time survivor, asymptomatic or with bone damage, sufferer or caregiver, you are not alone. The Myeloma community is strong, informed, and involved. Even the most experienced veteran can find battling Myeloma daunting but why fight that battle alone? Come to a support group meeting and you will find that there are people who have already lived through whatever you’re enduring now. Take advantage of their experience and share what you’ve learned with others. Most of all don’t be afraid to ask questions… that’s how we all grow stronger.
Please contact us if you are interested in starting a support group in your area.
April 14 – IMPORTANT NOTICE FOR THE TWIN CITIES SUPPORT GROUP: Our scheduled speaker for today’s meeting has cancelled. We will continue with our meeting as a “General Discussion”.
April 14 – IMPORTANT NOTICE FOR THE CENTRAL MINNESOTA SUPPORT GROUP: Due to the prediction of a blizzard on Saturday, the April 14 meeting has been cancelled. We apologize for any inconvenience this may cause our members but under the circumstances we prefer to follow the adage, “Safety First”.
American Society of Hematology (ASH) Conference Round Up
Last month’s America Society of Hematology annual conference brought many big announcements regarding therapies and testing. Almost every Myeloma interest & advocacy organization posted some sort of roundup of what they considered the meeting’s highlights. Among them:
• The International Myeloma Foundation (IMF) produced, “The Best of ASH”, a 60-minute video hosted by it’s president, Brian Durie, M.D. which can be viewed HERE.
• The Multiple Myeloma Research Foundation (MMRF) posted a slide show titled “Making Sense of Myeloma Treatment Advances” which can be found HERE.
• A very optimistic Leukemia and Lymphoma Society(LLS) called it’s conference review, “Can We Start Using The Word ‘Cure?’ It can be found Here.
• The Myeloma Crowd created a page with links to interviews with five leading researchers. “Experts’ Picks: The Best Of ASH in Summary”, can be found Here.
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UPDATE: Financial Aid – Updated April 10, 2018
Three co-pay assistance program are currently open to Myeloma patients.
• The HealthWell Foundation Multiple Myeloma Medicare Access Program is OPEN for Myeloma. The program’s maximum award level is $10,000 annually for insurance premiums, co-pay, co-insurance, and medical & prescription deductibles. The HealthWell Foundation Myeloma page can be found HERE.
• The Patient Advocate Foundation’s Co-pay Relief Fund is OPEN to Myeloma patients who earned under 400% of the 2017 Federal Poverty Level and have Medicare, Medicaid, or Military Benefits. Maximum award level is $10,000 annually for patients on a Medicare including Supplemental and Advantage plans. The PAF Co-pay Relief Fund can be found HERE.
• After briefly being fully subscribed The Leukemia & Lymphoma Society (LLS) Co-Pay Assistance Program is again OPEN for new applicants. Maximum award level is $7,500 annually to be used for Blood cancer treatment-related co-payments, Private health insurance premiums, and Medicare Part B, Medicare Plan D, Medicare Supplementary Health Insurance, Medicare Advantage premium, Medicaid Spend-down or co-pay obligations. The LLS Co-pay Relief Fund can be found HERE.
The Assistance Fund, CancerCare, Good Days/Chronic Disease Fund, and Patient Access Network Foundation (PAN) remain closed to Myeloma patients.
Please contact us if you become aware of any new programs or of any existing program re-opening. At times like this we truly need to live up to our “Support” group mission.
Read Our Blog !
Since 2017 we are using our Blog section to summarize our most recent meetings and provide links to issues, resources and websites which members reference or request. Please feel free to leave a comment. Because we are using the free version of WordPress you may see an ad in the Blog section. We receive no money and have no relationship with any advertiser.
LLS Travel Assistance Program (Minnesota & Dakotas)
For 2017-18 the Minnesota Chapter (including the Dakotas) of the Leukemia & Lymphoma Society (LLS) is offering a one-time annual grant of $500 per patient as part of its Travel Assistance Program. The grant is available for qualified blood cancer patients with financial need between July 1, 2017 and June 30, 2018. Click HERE for more information and a link to the application. The national LLS Travel Assistance program is currently fully subscribed.
Minnesota’s Support Community
Minnesota is the home of two internationally recognized leaders in Myeloma research; The Mayo Clinic and the University of Minnesota. In addition to these two institutions there are many other hospitals, clinics, and cancer centers which, not only treat Myeloma, but also take part in latest drug trials and treatment studies.
We also have very active support groups. Their locations are:
All of the group’s meet once a month on different days except the Fairmont Area support group which meets every other month. Please visit each group’s web page to see what they’re up to this month.