If you have been living with Multiple Myeloma; whether you are newly diagnosed or a long-time survivor, asymptomatic or with bone damage, sufferer or caregiver, you are not alone. The Myeloma community is strong, informed, and involved. Even the most experienced veteran can find battling Myeloma daunting but why fight that battle alone? Come to a support group meeting and you will find that there are people who have already lived through whatever you’re enduring now. Take advantage of their experience and share what you’ve learned with others. Most of all don’t be afraid to ask questions… that’s how we all grow stronger.
Please contact us if you are interested in starting a support group in your area.
American Society of Hematology (ASH) Conference Round Up
Last month’s America Society of Hematology annual conference brought many big announcements regarding therapies and testing. Almost every Myeloma interest & advocacy organization posted some sort of roundup of what they considered the meeting’s highlights. Among them:
• The International Myeloma Foundation (IMF) produced, “The Best of ASH”, a 60-minute video hosted by it’s president, Brian Durie, M.D. which can be viewed HERE.
• The Multiple Myeloma Research Foundation (MMRF) posted a slide show titled “Making Sense of Myeloma Treatment Advances” which can be found HERE.
• A very optimistic Leukemia and Lymphoma Society(LLS) called it’s conference review, “Can We Start Using The Word ‘Cure?’ It can be found Here.
• The Myeloma Crowd created a page with links to interviews with five leading researchers. “Experts’ Picks: The Best Of ASH in Summary”, can be found Here.
This website is hosted on the free version of WordPress. WordPress offers excellent creation, maintenance, and statistical tools along with saving us the cost of renting server space. The drawback is that they may post advertisements at the bottom of our webpages. Myeloma Support Minnesota in no way recommends, supports, or endorses any of the advertised companies. In fact, we have no idea who, or what, is seen by our viewers (and some seem a bit shady).
UPDATE: Financial Aid – Updated January 19, 2017
The Patient Advocate Foundation’s Co-Pay Relief Fund has changed the Status of Myeloma to OPEN. The program’s maximum award level $10,000 annually. This is for patients with Medicare, Medicaid, or Military Benefits only. The PAF Myeloma Page can be found HERE.
The Leukemia & Lymphoma Society (LLS) Co-Pay Assistance Program has changed the Status of Myeloma to OPEN. The program’s maximum award level $7,500 annually for insurance premiums, co-pay, co-insurance, and medical & prescription deductibles. The LLS Myeloma page can be found The LLS Myeloma page can be found here HERE.
The Patient Access Network Foundation (PAN) is again OPEN to myeloma patients. The program’s maximum award level $8,400 annually for assistance with insurance premiums, co-payments, co-insurance and deductibles. The Patient Access Network Myeloma page can be found HERE.
As of this week the Healthwell Fouindation is again closed. The Assistance Fund, CancerCare, and Good Days/Chronic Disease Fund remain closed to Myeloma patients.
Please contact us if you become aware of any new programs or of any existing program re-opening. At times like this we truly need to live up to our “Support” group mission.
Read Our Blog !
New for 2017 we are now using our Blog section to summarize our most recent meetings and provide links to issues, resources and websites which members reference or request. Please feel free to leave a comment. Because we are using the free version of WordPress you may see an ad in the Blog section. We receive no money and have no relationship with any advertiser.
LLS Travel Assistance Program (Minnesota & Dakotas)
For 2017-18 the Minnesota Chapter (including the Dakotas) of the Leukemia & Lymphoma Society (LLS) is offering a one-time annual grant of $500 per patient as part of its Travel Assistance Program. The grant is available for qualified blood cancer patients with financial need between July 1, 2017 and June 30, 2018. Click HERE for more information and a link to the application. The national LLS Travel Assistance program is currently fully subscribed.
Minnesota’s Support Community
Minnesota is the home of two internationally recognized leaders in Myeloma research; The Mayo Clinic and the University of Minnesota. In addition to these two institutions there are many other hospitals, clinics, and cancer centers which, not only treat Myeloma, but also take part in latest drug trials and treatment studies.
We also have very active support groups. Their locations are:
All of the group’s meet once a month on different days except the Fairmont Area support group which meets every other month. Please visit each group’s web page to see what they’re up to this month.