If you have been living with Multiple Myeloma; whether you are newly diagnosed or a long-time survivor, asymptomatic or with bone damage, sufferer or caregiver, you are not alone. The Myeloma community is strong, informed, and involved. Even the most experienced veteran can find battling Myeloma daunting but why fight that battle alone? Come to a support group meeting and you will find that there are people who have already lived through whatever you’re enduring now. Take advantage of their experience and share what you’ve learned with others. Most of all don’t be afraid to ask questions… that’s how we all grow stronger.
UPDATE: Financial Aid
As of April 12 three copay assistance plans or open for new Myeloma applicants. They are the Leukemia & Lymphoma Society, the HealthWell Foundation and the Patient Advocate Foundation. For rules and contact information visit the Financial Aid page on this website.
2017 IMF Regional Community Workshop
The International Myeloma Foundation will hold its Annual Minnesota Regional Workshop on June 10 at the Westin Edina Galleria. If you’ve never attended a workshop you don’t know what you’ve missed. A wealth of up to date information is presented in plain English so be prepared to take notes. Scheduled speakers are:
Craig Cole, MD University of Michigan, Ann Arbor, MI
Dr. Martha Lacy Mayo Clinic, Rochester, MN
Teresa Miceli, RN, BSN, OCN Mayo Clinic-College of Medicine, Rochester, MN
Same day registration: 8AM -9AM, Workshop: 9:00AM – 3:00 PM. Breakfast and Lunch will be provided. Here is a link to the Event Info & Registration Page. Please preregister as it helps the organizers better plan the conference room’s layout and how many meals to order.
Read Our Blog !
New for 2017 we are now using our Blog section to summarize our most recent meetings and provide links to issues, resources and websites which members reference or request. Please feel free to leave a comment. Because we are using the free version of WordPress you may see an ad in the Blog section. We receive no money and have no relationship with any advertiser.
LLS Travel Assistance Program (Minnesota & Dakotas)
For 2017 the Minnesota Chapter (including the Dakotas) of the Leukemia & Lymphoma Society (LLS) is offering a one-time annual grant of $500 per patient as part of its Travel Assistance Program. The grant is available for qualified blood cancer patients with financial need between July 1, 2016 and June 30, 2017. Click HERE for more information and a link to the application.
Minnesota’s Support Community
Minnesota is the home of two internationally recognized leaders in Myeloma research; The Mayo Clinic and the University of Minnesota. In addition to these two institutions there are many other hospitals, clinics, and cancer centers which, not only treat Myeloma, but also take part in latest drug trials and treatment studies.
We also have very active support groups. Their locations are:
All of the group’s meet once a month on different days except the Fairmont Area support group which meets every other month. Please visit each group’s web page to see what they’re up to this month.