If you have been living with Multiple Myeloma; whether you are newly diagnosed or a long-time survivor, asymptomatic or with bone damage, sufferer or caregiver, you are not alone. The Myeloma community is strong, informed, and involved. Even the most experienced veteran can find battling Myeloma daunting but why fight that battle alone? Come to a support group meeting and you will find that there are people who have already lived through whatever you’re enduring now. Take advantage of their experience and share what you’ve learned with others. Most of all don’t be afraid to ask questions… that’s how we all grow stronger.
Please contact us if you are interested in starting a support group in your area.
NOTICE: Twin Cities Room Change
As of October the Twin Cities Multiple Myeloma Support Group’s have moved to a new larger room at Park Nicollet Methodist Hospital. It’s new home is downstairs in the Heart & Vascular Center conference room B&C. Park in the Blue Ramp at the front of the hospital, the conference room is on the Ground floor across the hallway from the winding staircase. Meetings continue be held from 10:00 am to 12:00 noon.
UPDATE: Financial Aid
As of November 16, 2017 the Leukemia & Lymphoma Society Co-pay assistance program has reopened to Myeloma patients. Grants of $7,500 are available to qualified recipients. The Assistance Fund, CancerCare, Good Days/Chronic Disease Fund, Healthwell Foundation, Patient Advocate Foundation, and the Patient Access Network remain closed to new MM applicants.
For now patients are advised to contact the financial aid programs of the drug manufacturers directly.
On Tuesday, November 14, Takeda Oncology will be hosting an event at the Sheraton St. Paul/Woodbury Hotel, 676 Bielenberg Drive in Woodbury. Kelly McCaul, M.D.of Avera Hematology & Transplant in Sioux Falls, SD and a Takeda Patient Ambassador will discuss treatment and living with Ninlaro, the oral version of Velcade. Registration is at 6:00pm and the event begins at 6:30pm.
Online Registration can be found HERE
or Call 1-844-617-6468 and select option 2 to enroll.
Read Our Blog !
New for 2017 we are now using our Blog section to summarize our most recent meetings and provide links to issues, resources and websites which members reference or request. Please feel free to leave a comment. Because we are using the free version of WordPress you may see an ad in the Blog section. We receive no money and have no relationship with any advertiser.
LLS Travel Assistance Program (Minnesota & Dakotas)
For 2017-18 the Minnesota Chapter (including the Dakotas) of the Leukemia & Lymphoma Society (LLS) is offering a one-time annual grant of $500 per patient as part of its Travel Assistance Program. The grant is available for qualified blood cancer patients with financial need between July 1, 2017 and June 30, 2018. Click HERE for more information and a link to the application. The national LLS Travel Assistance program is currently fully subscribed.
Minnesota’s Support Community
Minnesota is the home of two internationally recognized leaders in Myeloma research; The Mayo Clinic and the University of Minnesota. In addition to these two institutions there are many other hospitals, clinics, and cancer centers which, not only treat Myeloma, but also take part in latest drug trials and treatment studies.
We also have very active support groups. Their locations are:
All of the group’s meet once a month on different days except the Fairmont Area support group which meets every other month. Please visit each group’s web page to see what they’re up to this month.