You Are Not Alone!

If you have been living with Multiple Myeloma; whether you are newly diagnosed or a long-time survivor, asymptomatic or with bone damage, sufferer or caregiver, you are not alone.  The Myeloma community is strong, informed, and involved.  Even the most experienced veteran can find battling Myeloma daunting but why fight that battle alone?  Come to a support group meeting and you will find that there are people who have already lived through whatever you’re enduring now.  Take advantage of their experience and share what you’ve learned with others.  Most of all don’t be afraid to ask questions… that’s how we all grow stronger.


Please contact us if you are interested in starting a support group in your area.

NOTICE: Twin Cities Room Change
October 10, 2017 will mark the Twin Cities Multiple Myeloma Support Group’s first meeting in it’s new larger room at Park Nicollet Methodist Hospital.  It’s new home will be downstairs in the Heart & Vascular Center conference room B&C. Park in the Blue Ramp at the front of the hospital, the conference room is on the Ground floor across the hallway from the winding staircase.  Meetings continue be held from 10:00 am to 12:00 noon.

UPDATE: Financial Aid
As of October 18, 2017 there are no copay assistance plans open to new Myeloma applicants and apparently aid has been suspended to those currently enrolled in programs. Within the last month Patient Advocate Foundation, Healthwell Foundation, Leukemia & Lymphoma Society, and CancerCare have closed joining Good Days from the Chronic Disease Fund and the Patient Access Network Foundation which suspended their services earlier in the year.

For now patients are advised to contact the financial aid programs of the drug manufacturers directly.

BIG NEWS: And Then There Were … Five! 
On September 9, 2017 fourteen people attended the inaugural meeting of the Central Minnesota Multiple Myeloma Support Group.  The group’s meetings are held the second Saturday of each month, from  10:00 am – 12:00 noon, at the Willmar, MN Fire Department.  You may have already seen two of the group’s leaders;  Bev and Tony Hartzburg are Takeda Patient Ambassadors.  They’ve visited many support groups and a video about their experiences is posted on the Velcade Patient Stories webpage.

Read Our Blog !
New for 2017 we are now using our Blog section to summarize our most recent meetings and provide links to issues, resources and websites which members reference or request.  Please feel free to leave a comment.   Because we are using the free version of WordPress you may see an ad in the Blog section.  We receive no money and have no relationship with any advertiser.

LLS Travel Assistance Program (Minnesota & Dakotas)
For 2017-18 the Minnesota Chapter (including the Dakotas) of the Leukemia & Lymphoma Society (LLS) is offering a one-time annual grant of $500 per patient as part of its Travel Assistance Program.  The grant is available for qualified blood cancer patients with financial need  between July 1, 2017 and June 30, 2018. Click HERE for more information and a link to the application.  The national LLS Travel Assistance program is currently fully subscribed.

Minnesota’s Support Community 
Minnesota is the home of two internationally Minnesota Seal on Silhouette Skewrecognized leaders in Myeloma research; The Mayo Clinic and the University of Minnesota.  In addition to these two institutions there are many other hospitals, clinics, and cancer centers which, not only treat Myeloma, but also take part in latest drug trials and treatment studies.

We also have very active support groups.  Their locations are:

Twin Cities (St. Louis Park)

Stillwater

Rochester

Fairmont Area

Central Minnesota

All of the group’s meet once a month on different days except the Fairmont Area support group which meets every other month.  Please visit each group’s web page to see what they’re up to this month.

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