You Are Not Alone!

If you have been living with Multiple Myeloma; whether you are newly diagnosed or a long-time survivor, asymptomatic or with bone damage, sufferer or caregiver, you are not alone.  The Myeloma community is strong, informed, and involved.  Even the most experienced veteran can find battling Myeloma daunting but why fight that battle alone?  Come to a support group meeting and you will find that there are people who have already lived through whatever you’re enduring now.  Take advantage of their experience and share what you’ve learned with others.  Most of all don’t be afraid to ask questions… that’s how we all grow stronger.

Please contact us if you are interested in starting a support group in your area.

NOTICE:  July 21 – The International Myeloma Foundation Annual Minnesota Regional Workshop.
If you’ve never attended an IMF workshop you don’t know what you’ve missed. A wealth of information is presented in plain English so be prepared to take notes. Refreshments and lunch will be provided.
The Westin Edina Galleria, 3201 Galleria, Edina, MN 55435
The Speakers:
Craig Cole, MD; University of Michigan, Ann Arbor, MI
Martha Lacy, MD. Professor of Medicine Mayo Clinic, Rochester, MN
Teresa Miceli, RN, BSN, OCN Mayo Clinic-College of Medicine, Rochester, MN
Registration is free, but limited. Refreshments & lunch will be provided.
The IMF Event Registration page can be found HERE

May 20th’s J.C Golf Tournament in Saint Cloud’s was a great success.  The event had 98 golfers plus about 35 dinner guests and volunteers who together raised just over $15,000 for the International Myeloma Foundation.  Congratulations to Bob Zins and the crew who have dedicated themselves to this cause of 19 years.  Saint Cloud still doesn’t have a Myeloma support group.  Certainly the success of the golf tournament indicates enough interest in the community to create and maintain one.

UPDATE: Financial Aid – Updated June 2, 2018
Now there are four!   Another co-pay assistance program has opened its fund to Myeloma patients.

The Patient Access Network Foundation Foundation (PAN) Co-Pay Relief Fund has changed the Status of Myeloma to OPEN for new and renewal patients.  The award limit is $8,400 per year with the ability to reapply for a second grant during their eligibility period subject to availability of funding.  The program is open to all Myeloma patients with insurance who are using a drug on PAN’s list of covered medications. The patient’s income must fall at or below 500% of the Federal Poverty Level.  The PAN Myeloma Page can be found HERE.

• The HealthWell Foundation Multiple Myeloma Medicare Access Program is OPEN for Myeloma.  The program’s maximum award level is $10,000 annually for insurance premiums, co-pay, co-insurance, and medical & prescription deductibles. The HealthWell Foundation Myeloma page can be found HERE.

• The Patient Advocate Foundation’s Co-pay Relief Fund is OPEN to Myeloma patients who earned under 400% of the 2017 Federal Poverty Level and have Medicare, Medicaid, or Military Benefits.  Maximum award level is $10,000 annually for patients on a Medicare including Supplemental and Advantage plans. The PAF Co-pay Relief Fund can be found HERE.

The Leukemia & Lymphoma Society (LLS) Co-Pay Assistance Program is OPEN for new applicants. Maximum award level is $7,500 annually to be used for Blood cancer treatment-related co-payments, Private health insurance premiums, and Medicare Part B, Medicare Plan D, Medicare Supplementary Health Insurance, Medicare Advantage premium, Medicaid Spend-down or co-pay obligations.  The LLS Co-pay Relief Fund can be found HERE.

The Assistance Fund, CancerCare, Good Days/Chronic Disease Fund, and Patient Access Network Foundation (PAN) remain closed to Myeloma patients.

Please contact us if you become aware of any new programs or of any existing program re-opening.  At times like this we truly need to live up to our “Support” group mission.

Read our Blog!
Since 2017 we are using our Blog section to summarize our most recent meetings and provide links to issues, resources and websites which members reference or request.  Please feel free to leave a comment.   Because we are using the free version of WordPress you may see an ad in the Blog section.  We receive no money and have no relationship with any advertiser.

LLS Travel Assistance Program (Minnesota & Dakotas)
For 2017-18 the Minnesota Chapter (including the Dakotas) of the Leukemia & Lymphoma Society (LLS) is offering a one-time annual grant of $500 per patient as part of its Travel Assistance Program.  The grant is available for qualified blood cancer patients with financial need  between July 1, 2017 and June 30, 2018. Click HERE for more information and a link to the application.  The national LLS Travel Assistance program is currently fully subscribed.

Minnesota’s Support Community 
Minnesota is the home of two internationally Minnesota Seal on Silhouette Skewrecognized leaders in Myeloma research; The Mayo Clinic and the University of Minnesota.  In addition to these two institutions there are many other hospitals, clinics, and cancer centers which, not only treat Myeloma, but also take part in latest drug trials and treatment studies.

We also have very active support groups.  Their locations are:

Twin Cities (St. Louis Park)



Fairmont Area

Central Minnesota

All of the group’s meet once a month on different days except the Fairmont Area support group which meets every other month.  Please visit each group’s web page to see what they’re up to this month.

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